Sickle Cell Disease Association of America Archives

FDA approves first gene therapies for Sickle Cell Disease

December 9, 2023

sickle cell disease

In the News… a recap of news of the week, ending April 19th April 19, 2025
RHODE ISLAND & VICINITY Call & Times will switch from a newspaper with traditional home delivery to distribution by mail Bishop Lewandowski is fluent in Spanish – and Portuguese SafeWise named these cities/towns as RI’s safest, in order: Bristol – South Kingstown – Cumberland – North Kingstown -Smithfield Four-time Boston Marathon winner Bill Rodgers and… […]
RINewsToday
We Cook: Mill’s Tavern’s Long Island Duck Breast with carrot puree, pickled cherries, walnuts… April 19, 2025
by Edward Bolus, Executive Chef, Mill’s Tavern, Providence Long Island Duck Breast with Rose Water Carrot Purée, Pickled Cherries, Toasted Walnuts & Cherry Gastrique (Serves 4): Seared duck breast meets sweet-and-sour cherries in this elegant yet cozy plate, rounded out with silky rose water carrot purée, a drizzle of cherry gastrique, and crunchy toasted walnuts!… […]
RINewsToday
Burn with Kearns: A matter of honor, and neuroscience. Self defense 4 U – Kevin Kearns April 19, 2025
by Kevin Kearns, contributing writer, exercise and fitness It’s a Matter of Honor — and Neuroscience – Why Partner Training Over 50 Isn’t Just Smart… It’s Strategic There’s a reason elite military units, sports teams, and high-performing companies invest in team-building through physical activity—and it goes far beyond burning calories or looking good in a… […]
Kevin Kearns
Rabbis reflect on the meaning and observance of Passover – G. Wayne Miller, Ocean State Stories April 19, 2025
By G. Wayne Miller, Ocean State Stories, republished here with agreement Passover, also called Pesach, began on April 12, and ends at sundown on April 20. This story was originally published on April 15, 2024, with a headline noting the dates last year. Its meaning remains relevant in 2025. — Rabbi Ethan Adler, the religious… […]
RINewsToday
Rhode Island Weekend Weather for April 19/20, 2025 – Jack Donnelly April 19, 2025
by Jack Donnelly, meteorologist Saturday 4/19/25: Decent southwesterly flow ahead of a cold front will allow for pleasantly warm air in for the first part of the day, with a chance of showers in the evening. Highs in the upper 70’s and lows in the low 50’s and gusts out of the southwest to 25… […]
Jack Donnelly
Outdoors in RI: 138th Arbor Day, Princess Kate and access to nature, Winnapaug Pond, Vets fish April 18, 2025
Arbor Day – Plant a tree! Rhode Island Tree Council (RI Tree) will host this year’s celebration of Arbor Day at The Providence Country Day (PCD) School, 600 Waterman Avenue, East Providence, RI, on April 25th, starting at 11:00 a.m. This free event includes a tree-planting ceremony on PCD grounds, speakers, and a Tree City USA Awards presentation to… […]
RINewsToday
Saving lives, Paul Rego donates his 100th gallon of blood at the Rhode Island Blood Center April 18, 2025
Rhode Island retiree Paul Rego, a longtime blood donor, donated his 100th gallon of blood on Thursday, April 17th at Rhode Island Blood Center’s Providence Donor Center. Paul, relocating to Rhode Island in 1982, began as a frequent blood donor in his home state of Pennsylvania. He was inspired to donate initially when his mother-in-law underwent a… […]
RINewsToday
Rhode Island Weather for April 18, 2025 – Jack Donnelly April 18, 2025
by Jack Donnelly, meteorologist A pleasant and welcomingly warm day to close out the work week, afternoon highs punching into the mid 60’s and may approach 70 here and there after morning lows in the upper 30’s with a slightly gusty westerly breeze. It’s an “A-” day! ___ Follow Jack’s weather forecasts, here: WEATHER WITH… […]
Jack Donnelly
National Financial Literacy Month. BankRI offers free, virtual workshop: “Smart money moves… April 18, 2025
April is National Financial Literacy Month In recognition of April as National Financial Literacy Month, Bank Rhode Island (BankRI) and Pawtucket Central Falls Development are partnering to host a no-cost financial workshop via Zoom on Wednesday, April 23. The session, called “Smart Money Moves for a Stronger Foundation,” will begin at 5:30 p.m. and is… […]
RINewsToday
GriefSpeak. Technology in Death and Grief – Mari Nardolillo Dias April 18, 2025
by Mari Nardolillo Dias, EdD, contributing writer, grief and grieving Names and Places have been changed to ensure confidentiality. The fact that technology is ubiquitous can present both advantages and disadvantages in the field of Thanatology (Study of Death and Dying). Take Diana, a single mom of three teenage sons. The boys, Jack, Jim and… […]
Mari Dias

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FDA approves first gene therapies for Sickle Cell Disease

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